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Questionnaire on Sjogren's Syndrome Part 1

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418 answers - 1,110 votes
Depression
107 votes
25.6%
Anxiety
100 votes
23.9%
Lupus
87 votes
20.8%
Rheumatoid Arthritis
85 votes
20.3%
Other autoimmune disease
80 votes
19.1%
74 votes
17.7%
Carpal Tunnel Syndrome
Lyme disease
I was not misdiagnosed
Fibromyalgia
Have multiple endo disorders
I was not wrongly diagnosed
ITP
Ibs chronic fatigue
I was diagnosed bipolar, but the ups and downs followed my flairs
None
Sinus infections
73 votes
17.5%
The results of "Getting older."
72 votes
17.2%
No other diagnosis
57 votes
13.6%
Chronic Migraines
47 votes
11.2%
Allergic reactions
46 votes
11.0%
Poor diet or nutrition
40 votes
9.6%
Peripheral Neuropathy
37 votes
8.9%
Dental hygiene issues
35 votes
8.4%
Multiple Sclerosis
31 votes
7.4%
Mental illness
31 votes
7.4%
Hypochondia
27 votes
6.5%
Diabetes
22 votes
5.3%
Celiac\Coeliac Disease
18 votes
4.3%
Recurring Candida
14 votes
3.3%
Degenerative Eye disease
10 votes
2.4%
Cancer
9 votes
2.2%
Parasite or bacterial overgrowth
7 votes
1.7%
418 answers
under 1 year
209 votes
50.0%
1-2 years
58 votes
13.9%
5-6 years
32 votes
7.7%
2-3 years
31 votes
7.4%
3-4 years
24 votes
5.7%
8-10 years
22 votes
5.3%
10-15 years
13 votes
3.1%
15-20 years
10 votes
2.4%
6-7 years
9 votes
2.2%
20-30 years
8 votes
1.9%
greater than 30 years.
2 votes
0.5%
418 answers - 1,534 votes
Test for elevated ANA (AntiNuclear Antibody)
230 votes
55.0%
Test for SSA/Ro antibodies
226 votes
54.1%
Test for SSB/La antibodies
188 votes
45.0%
Test for RF (Rheumatoid Factor)
129 votes
30.9%
Schirmer test
90 votes
21.5%
ESR (Erythrocyte Sedimentation Rate)
84 votes
20.1%
IGs (Immunoglobulins)
68 votes
16.3%
63 votes
15.1%
Not got diagnosed
Not definite
Interview/discussion of my symptoms
Klinefelter syndrome
Blood test, not sure which one
Autoimmune disease
Elevated amalyse to salivary glands
RA
Lupus test
blood work
Labial gland (lip) biopsy
61 votes
14.6%
Accompanying diagnosis of Raynaud's Phenomenon
49 votes
11.7%
Nerve conduction tests
36 votes
8.6%
Accompanying diagnosis of Rheumatoid Arthiritis
33 votes
7.9%
MRI of brain and spinal cord
28 votes
6.7%
Extractable Nuclear Antigen Panel
27 votes
6.5%
Liver panel test
22 votes
5.3%
Accompanying diagnosis of Lupus
19 votes
4.5%
Rose Bengal dye test
18 votes
4.3%
Skin biopsy test for Small Fiber Neuropathy
16 votes
3.8%
Lissamine green dye test
15 votes
3.6%
Slit lamp test
14 votes
3.3%
Saliva scan
13 votes
3.1%
Cat scan of brain
12 votes
2.9%
"Spit" Cup test
11 votes
2.6%
Autoantibodies to Salivary Gland Protein-1
9 votes
2.2%
Cutaneous nerve/skin biopsy
8 votes
1.9%
Sialometry
7 votes
1.7%
Lumbar puncture
7 votes
1.7%
Parotid Secretory Protein
6 votes
1.4%
Carbonic anhydrase VI
6 votes
1.4%
Parotid Scintigraphy
6 votes
1.4%
Autonomic testing
6 votes
1.4%
Accompanying diagnosis of schleroderma
6 votes
1.4%
Accompanying diagnosis of Primary Biliary Chongalitis or Autoimmune Hepatitis
6 votes
1.4%
Accompanying lung disease
6 votes
1.4%
Accompanying Kidney disease
4 votes
1.0%
Accompanying Lymphoma
4 votes
1.0%
Accompanying diagnosis of Myelitis
1 vote
0.2%
418 answers
Yes
53 votes
12.7%
No
328 votes
78.5%
Yes, but I do have unrelated mental health issues.
29 votes
6.9%
I choose not to answer this.
8 votes
1.9%
418 answers
Yes
207 votes
49.5%
No
142 votes
34.0%
No, because I had severe side effects.
54 votes
12.9%
No, because I choose not to use medications to treat my Sjogren's Syndrome
15 votes
3.6%
419 answers
Yes
122 votes
29.1%
No
290 votes
69.2%
No, because I choose not to use medications to treat my Sjogren's Syndrome
4 votes
1.0%
I choose not to answer this.
3 votes
0.7%