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Questionnaire on Sjogren's Syndrome Part 1

The survey is now closed. Thank you for your participation.

418 answers (378 locked)
Yes
35 votes
87.5%
No
0 votes
0%
In the process of getting a diagnosis
5 votes
12.5%
418 answers (378 locked)
in my 40s
13 votes
32.5%
in my 30s
7 votes
17.5%
in my 50s
9 votes
22.5%
in my twenties
5 votes
12.5%
in my teenage years or earlier
4 votes
10.0%
In my 60s
1 vote
2.5%
In my 70s or later
1 vote
2.5%
418 answers (378 locked)
Female
24 votes
60.0%
Male
16 votes
40.0%
Transgender male
0 votes
0%
Transgender female
0 votes
0%
Nonbinary
0 votes
0%
Other
0 votes
0%
I choose not to answer this
0 votes
0%
418 answers - 426 votes (386 locked)
Yes
15 votes
3.6%
No
20 votes
4.8%
There were no incorrect diagnoses, just a lot of disorders ruled out until the right diagnosis was made.
5 votes
1.2%
418 answers - 1,110 votes (990 locked)
Depression
17 votes
4.1%
Anxiety
15 votes
3.6%
Lupus
7 votes
1.7%
Rheumatoid Arthritis
9 votes
2.2%
Other autoimmune disease
3 votes
0.7%
9 votes
2.2%

Mumps

hashimoto's

Drs did at first not know what wS wrong

Sfn

Dehydrated

recurrent asthmatic bronchitis

ALS PLS

Sinus infections
5 votes
1.2%
The results of "Getting older."
7 votes
1.7%
No other diagnosis
0 votes
0%
Chronic Migraines
5 votes
1.2%
Allergic reactions
4 votes
1.0%
Poor diet or nutrition
2 votes
0.5%
Peripheral Neuropathy
8 votes
1.9%
Dental hygiene issues
3 votes
0.7%
Multiple Sclerosis
3 votes
0.7%
Mental illness
6 votes
1.4%
Hypochondia
7 votes
1.7%
Diabetes
3 votes
0.7%
Celiac\Coeliac Disease
2 votes
0.5%
Recurring Candida
1 vote
0.2%
Degenerative Eye disease
1 vote
0.2%
Cancer
1 vote
0.2%
Parasite or bacterial overgrowth
1 vote
0.2%
418 answers - 4,937 votes (4,472 locked)
Fatigue
34 votes
8.1%
"Brain Fog" or Cognitive problems
28 votes
6.7%
Dry throat
27 votes
6.5%
Dry nose
27 votes
6.5%
Sleep disurbances
18 votes
4.3%
Hoarse voice
18 votes
4.3%
Dryness with the vagina
10 votes
2.4%
Arthralgia (inflammation causing arthritis like pain)
17 votes
4.1%
Raynaud's Phenomenon
17 votes
4.1%
Dry ears
15 votes
3.6%
Fibromylagia
16 votes
3.8%
Blurry or double vision
13 votes
3.1%
Swollen Parotids
12 votes
2.9%
Rashes, spiderweb veins and red spots on the body
9 votes
2.2%
Food sensitivities
10 votes
2.4%
Trouble speaking
15 votes
3.6%
Dehydration
8 votes
1.9%
Peripheral Neuropathy
17 votes
4.1%
Allergies
9 votes
2.2%
Thyroid dysfuntion
8 votes
1.9%
Confusion
6 votes
1.4%
Scent or chemical sensitivities
7 votes
1.7%
Low blood pressure
5 votes
1.2%
High blood pressure
9 votes
2.2%
Hearing issues
9 votes
2.2%
Executive Dysfunction (inability to get it together or to plan or organize things.
8 votes
1.9%
Problems breathing
6 votes
1.4%
Motility issues (using the bathroom: too slow or too fast)
3 votes
0.7%
Diminished sense of smell
5 votes
1.2%
Diminished sense of taste
5 votes
1.2%
Small Fiber Neuropathy
11 votes
2.6%
Blepharitis
10 votes
2.4%
Syncope or presyncope: Passing out or almost Passing out
5 votes
1.2%
Metabolic issues
1 vote
0.2%
Female sexual dysfunction
3 votes
0.7%
Low estrogen levels
5 votes
1.2%
Candida
3 votes
0.7%
3 votes
0.7%

Mucus in throat

Gut issues

interstitial cystitis , urethritis , interstitial pneumonitis

Dysautonomia
5 votes
1.2%
Salivary stones
2 votes
0.5%
Fungal infections
2 votes
0.5%
Miscarriage
1 vote
0.2%
Vasculitis
4 votes
1.0%
Inability to process fats
2 votes
0.5%
Female infertility
0 votes
0%
Liver disease
2 votes
0.5%
Low testosterone
4 votes
1.0%
Meibomian gland dysfunction
5 votes
1.2%
Kidney disease
0 votes
0%
Shrunken salivary ducts
1 vote
0.2%
Myeopthaty
0 votes
0%
Dryness with the scrotum or scrotal sack area?
2 votes
0.5%
Lymphoma
0 votes
0%
Male sexual dysfunction
3 votes
0.7%
Low androgens
0 votes
0%
Male infertility
0 votes
0%
418 answers (378 locked)
Yes
12 votes
30.0%
No
28 votes
70.0%
416 answers (377 locked)
Yes
32 votes
82.1%
No
7 votes
17.9%
417 answers (377 locked)
Yes
37 votes
92.5%
No
3 votes
7.5%
408 answers (370 locked)
Yes, Peripheral Neuropathy
18 votes
47.4%
No
6 votes
15.8%
Yes, Small Fiber Neuropathy
9 votes
23.7%
4 votes
10.5%

Numbness

Bilateral ulnar nerve neuropathies

Don't know

I choose not to answer this.
1 vote
2.6%
418 answers - 493 votes (451 locked)
No
29 votes
6.9%
Yes, Lung involvement
7 votes
1.7%
Yes, Liver involvement
4 votes
1.0%
Yes, Kidney involvement
2 votes
0.5%
Yes, Heart invovlement
0 votes
0%
0 votes
0%
I choose not to answer this.
0 votes
0%
418 answers (378 locked)
Yes
10 votes
25.0%
No
30 votes
75.0%
I have chosen to forego medical treatment for other reasons besides financial reasons
0 votes
0%
I choose not to answer this.
0 votes
0%
418 answers (378 locked)
Yes
15 votes
37.5%
No
17 votes
42.5%
No, because I had severe side effects.
8 votes
20.0%
No, because I choose not to use medications to treat my Sjogren's Syndrome
0 votes
0%
415 answers (375 locked)
No
23 votes
57.5%
Yes, Salagen
5 votes
12.5%
Yes Evoxac
6 votes
15.0%
No, because I choose not to use medications to treat my Sjogren's Syndrome
0 votes
0%
No, because I have had bad experiences with Evoxac
2 votes
5.0%
No, because I have had bad experiences with Salagen
4 votes
10.0%
415 answers - 423 votes (382 locked)
No
38 votes
95.0%
Yes
2 votes
5.0%
No, because I choose not to use medications to treat my Sjogren's Syndrome
0 votes
0%
Yes, I take or have taken Rituximab
0 votes
0%
I no longer take any Biologic medication for Sjogren's Syndrome.
1 vote
2.5%
I choose not to answer this.
0 votes
0%
Yes, I take or have taken Epratuzumab
0 votes
0%
Yes, I take or have taken Belimumab
0 votes
0%
419 answers (379 locked)
Yes
11 votes
27.5%
No
28 votes
70.0%
No, because I choose not to use medications to treat my Sjogren's Syndrome
0 votes
0%
I choose not to answer this.
1 vote
2.5%
417 answers (377 locked)
Yes
17 votes
42.5%
No
11 votes
27.5%
Sometimes
9 votes
22.5%
I choose not to answer this.
3 votes
7.5%